Growing up, Larry Worfolk always felt he had an expiration date hanging over his head. Born in 1958 with cystic fibrosis (CF), Larry understood most children didn’t make it to adolescence before they succumbed to the disease, “I grew up believing that I was living the last five years of my life.” When Larry was...
Life is defined by moments and events. Moments that transform how we view the world, define our priorities, and test our strength. Shelby Gielen clearly remembers the day her life changed. The second of four children, Shelby enjoyed an active lifestyle, and was busy preparing for a provincial swimming competition when she was struck with...
Once viewed as a last resort for individuals living with organ failure, transplantation is rapidly becoming the preferred treatment of choice for a variety of diseases. There has been a transformational shift in thinking about what constitutes post-transplant success with more attention than ever being given to quality of life. Dr. Tom Blydt-Hansen knows transplantation...
It is often said if you want an honest appraisal of a situation, ask a child. You are likely to receive an answer that does not underscore nor overstate reality. For eight-year-old liver transplant recipient Ian Sewell, this is especially accurate, “Transplant lets you be with your family. It is hard sometimes and hurts sometimes....
This free workshop offers participants an introduction to the fundamentals of health research in Canada and explores the role of patient partners as members of the grant review process. Patients provide a unique expertise on their disease and have important perspectives on areas of research that are most relevant to their lives and disease experience....
With a movement towards greater patient engagement in Canadian research, it has become even more important to involve our transplant community in the research we fund. One key way we endeavour to do this is by sharing updates on our funded projects with our community at our annual Celebrate Transplant Research event. This September marked...
The leaves are changing colour, kids are back to school and everyone has a pumpkin spice latte in hand. It is that unmistakable time of year – fall has arrived. At TRF we are taking a moment to reflect on the exciting and productive spring and summer we have had on the research front and...
Please come out to support pediatric transplant research for the third annual Addison Fund pub night fundraiser, BFG (or Burgers for Good). This is fun, family friendly event! Date: Sunday, October 14 Time: 6 to 9pm Location: The New Oxford, 1144 Homer Street in Yaletown, Vancouver Ticket info: $25 each, includes beer, burger (veggie option...
The unique bond that characterises Adam Fine and Anthony Eden’s friendship dates back over two decades to when the two men were in elementary school. As is often the case, their lives took them in different directions upon graduation from university. Anthony pursued a career in law and went on to become a successful lawyer...